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Nutrition: An Important Part of Fighting Mesothelioma and Other Cancers

nutrition and mesotheliomaIn a study published in 2011 of pleural mesothelioma patients, 30% presented with unexplained weight loss. Losing weight for no reason can be a presenting symptom for different cancers. During a patient’s journey with cancer most all patients lose weight at some point. Some lose before and during treatment.

We know how difficult it is to balance having cancer and maintaining good nutrition. Often when one does not feel well the last think they may want to do is eat. Cancer treatments can affect the ability to taste and smell, thus limiting one’s appetite and their ability to eat enough calories and nutrients. Anorexia, the loss of appetite or desire to eat, is the most common symptom patients have. Cachexia is the term used to describe a metabolic disorder that affects as many as 80% of patients with advanced cancer. It involves extreme weight and muscle loss. The addition of more calories does not reverse cachexia. It affects patients in the late stages of many chronic illnesses such as heart failure, COPD, and kidney disease. Cachexia is being studied and different drug trials are being used in the hopes of reversing this condition. Cachexia is devastating to the patient and their loved ones as it is a constant reminder of how sick they are.

Eating healthy and including vegetables and fruits in a diet is not always the most appetizing when one is undergoing cancer treatment. Sometimes any calories are good calories during cancer treatments. If one is striving to maintain a healthy weight, high calorie foods can be your best defense.

Today while speaking with a patient, Mrs. P. who is undergoing radiation, she explained that she gets weighed once a week and to her surprise, she had lost 2 pounds. She knew in the past she had not been the healthiest eater, but thought she had been doing a good job with her nutrition as of late. Mrs. P. felt disappointed in herself, but she is 3 weeks into radiation and “not giving up.” The side effects of weight loss can include feeling physically weak and having the inability to keep up with daily activities. If you are already underweight this can be dangerous territory, especially psychologically. Therefore it is important that you are maintaining a healthy weight because you will feel good about yourself and in turn, better about your treatments.

Everyone’s diet will be unique depending on their diagnosis and individual needs. If you are currently in the middle of treatment, it is best to seek out a dietician. There are resources for patients seeking help. Consult your doctor for a recommendation.

Nutrition is a very important component in fighting cancers, including mesothelioma. As stated before, high calorie foods, along with protein nutritional supplements like Ensure or Boost can add calories to your diet. If you choose Ensure or Boost think about adding ice cream to it. If pain is an issue, take your prescribed medicine and then try to eat. If nausea is the culprit, medicate yourself before it becomes a major issue. Maintaining a healthy weight is going to require work. The goal is to not let the weight loss get ahead of you.

– Lisa

Steve McQueen and the Will to Fight Mesothelioma

steve-mcqueenI recently read an article that was written about a man named Steve McQueen who had Mesothelioma. Steve McQueen was a famous movie actor in the 1960’s and 1970’s. This article was published in The New York Times almost 25 years since his passing. When reading the article, many things stood out to me. However, what stood out to me in particular was his path. When someone told him he had no more options in regard to his illness, he still moved forward.

The article briefly stated that Steve McQueen was diagnosed in December of 1979 with mesothelioma. His symptoms included a cough and shortness of breath.  His prognosis was poor and his treatment included chemotherapy and radiation. Unfortunately, by the time press had gotten hold of his diagnosis in the 1980s, his doctors had already run out of options to treat his disease. Faced with this challenge, he set off for Mexico in July with hope of finding a treatment to a rare incurable disease. In Mexico, his treatment plan included vitamins, minerals, massages, injections of cell preparation just to name a few. He also had to undergo surgery in November of 1980 to remove some of the tumors that were in his abdomen and neck. The next day Steve McQueen passed.

What caught my attention most was the length that someone will go to beat this disease. Yes, not everyone has the same options as Mr. McQueen but the drive to get better cannot be bought or provided for someone. I recently met a man through work who came to a mesothelioma center with nine dollars in his pocket, no place to stay, just an appointment. Maybe this was not the most well thought out plan but the idea that one will do anything to get better is inspiring. This article and many other stories make me reflect on different situations in which people find strength and are willing to do anything to fight this disease.

Another situation also occurred where I met a patient whose son was a physician. The son had suggested to his dad a holistic approach and enemas. While this was not what the doctors had prescribed, they were willing to try anything to beat this disease, or at least lessen the pain. People are willing to do anything. That is what a mesothelioma center is about. Here, people are willing to fight the fight with a patient. A specialized center has more to offer than just standard care. As I reflect back, this drive was present in so many patients who passed through a center. Sometimes that was not enough but knowing that one did everything must bring peace.  I have often heard doctors say to patients “what do you want? Do you want to fight” These are very simple questions but the answer is even more powerful.

– Lisa

Thoughts From An Eight-Year Mesothelioma Survivor

Well here I am in the summer of 2016, alive and well.   After being diagnosed with peritoneal mesothelioma in 2008, I had abdominal surgery and heated chemo in New York. I also received intraperitoneal chemo via my ports.

First let me begin, yes I am well, working, teaching classes and exercising, all with completely negative Cat Scans.  I must tell you that yes there are some bumps in my 8 year journey.  For me, my major issue after abdominal surgery and that heated chemo is small bowel obstructions.  Ok, now I must be honest I have had my share, but now I think I am a pro at early recognition.  In 2008, I had no idea what to do with a distended abdomen and abdominal pain but go to the E.R.  The treatment is always the same, pain med, cat scan, nasal gastric tube and NPO. (Nothing per oral).  The only problem with the treatment is the placement of that unruly tube.  Down your nose and yes into your stomach to drain everything that can’t pass through the blockage in the small intestines. Why the blockage you might ask??? Well your body after having abdominal surgery and heated chemo forms scar tissue which can pull on the intestines. If it pulls in such a way, the bowel will become narrow. When this happens, it makes it difficult for solid foods to pass, hence the dreaded bowel obstruction.  Well after having 4 obstructions I finally learned that raw vegetables just can’t pass into my narrow small bowel. I can still see the orange drainage in my tube, Carrots, the dreaded vegetable!!!!!!!!! For me they are on my list of Never Eat Raw.  I can proudly say I have learned that by modifying my diet I no longer visit the E.R. with an obstruction. Now, I cook my vegetables and thus they can pass through this narrow intestine. The ups and downs of surgery for this disease can be tiring BUT you will never see me back in any ER with an obstruction. It’s been 3 years for me without any abdominal issues.  It takes time to understand your body but in doing so you too will ease your journey to recovery.


About Julie Russell R.N.

julie-russellJulie Russell is an experienced Registered Nurse who is also a mesothelioma cancer survivor. Julie’s clinical expertise in nursing is in the area of the Cardiac Intervention. She has also been an instructor of Advanced Cardiac Life Support (ACLS) and Basic Life Support (BLS) for many years. Her varied nursing background includes roles as a nursing supervisor, educator and staff nurse.

Diagnosed with peritoneal mesothelioma in 2008, Julie has undergone surgery, chemotherapy, and become an advocate for herself and others. A mesothelioma diagnosis effects the whole family. Her two sons became active in the mesothelioma community as well. She is a passionate advocate for all patients, but peritoneal mesothelioma is a personal cause of hers. She will be a guest blogger for us. Julie will be sharing her personal experiences with peritoneal mesothelioma as she continues to live and work a full life. Since diagnosis, Julie has also become a grandmother. We invite you to follow Julie’s journey and feel free to contact her for any questions or support.

Putting Mesothelioma in Perspective: 5 Questions Plus

At the Harvard School of Education Dean James Ryan gave a speech at graduation that has made the rounds on the internet. He said there are 5 questions plus a bonus question that we should ask ourselves every day. They are:

  1. Wait? What?
  2. I wonder? Why? Or What?
  3. Couldn’t we at least?
  4. How can I help?
  5. What truly matters to me?
  • And the bonus question: Did you get what you wanted out of life – even so?

Thinking about the patients and families that have been diagnosed with mesothelioma these questions asked about their lives, seems to put mesothelioma into perspective. Mesothelioma is an aggressive cancer. The diagnosis throws patients and families into a world that they never planned on being involved in. How can they make sense of this diagnosis and go forward? These questions can prepare us for anything life throws our way, including a cancer diagnosis.

Imagine you have just been diagnosed with malignant mesothelioma. You and your families first response is wait? What? By asking this question you are looking for clarification. You are looking for answers, but asking for time to process what you have been told. You want time to slow down get the facts, make sure you understand.

Then you wonder why? Or if? – the second question. With the diagnosis of mesothelioma, you might think- when was I exposed to asbestos? Or what if we seek expert opinions- where and how? How might you improve the situation?

The third question – Couldn’t we at least? – can help you to get moving. Maybe get an opinion at a mesothelioma center, investigate a clinical trial, explore your options. This question enables a patient and family to move forward. Maybe there is fear in travelling or leaving your comfort zone, but by recognizing these things you can then make progress toward some action.

The fourth question, How can I help? – this can be a time for families to respect what the patient wants. The patient is the expert in their lives- you recognize that and help with what they want to do.

The fifth question is what really matters to me? How do you want to spend the time you have left- what relationships are important?

The bonus question is- Did you get what you wanted out of life- even so? This question is the one that sums it all up. Have you lived your life how you wanted? Despite being diagnosed with cancer has your life been fulfilling? Are you happy with how you have lived? Your relationships? Before, and during your cancer diagnosis. Even so- in spite of the ups and downs of life are you happy with your life?

By reviewing these questions in the context of your everyday life it could help us all prepare for the time when life gives us an unpleasant unexpected surprise and be happy for all the good things in your life.

– Ellie

Mesothelioma Specialist Spotlight – Dr. David Sugarbaker

Dr. David Sugarbaker

Dr David J SugarbakerDr. David Sugarbaker is a world renowned expert in thoracic surgery, including malignant pleural mesothelioma. Currently he is the Professor and Chief, Division of General Thoracic Surgery Baylor College of Medicine. He is also the Director of the Lung Institute at Baylor College of Medicine, along with the Olga Keith Wiess Chairman in Surgery at Baylor College of Medicine.

Dr. David Sugarbaker graduated from Cornell University in New York where he obtained his medical degree. He did his general surgical residency at Brigham and Women’s Hospital in Boston. He did his cardiothoracic residency at University of Toronto. From there he came back to Boston in 1988. Dr. Sugarbaker has focused his career on the treatment of thoracic malignancies. He is the former head of the thoracic division at the Brigham and Women’s Hospital Boston, MA. In 2002 he founded the International Mesothelioma Program at the Brigham and Women’s Hospital. He is well known internationally and recognized as a pioneer in the treatment of mesothelioma. Dr. Sugarbaker has published many articles in the treatment of mesothelioma and has received many awards including, The Pioneer Award and The Chadwick Medal.  The Chadwick Medal is given by the Massachusetts Pulmonary Section of the American Lung Association of the Northeast’s Medical and Scientific Branch. This medal is awarded to a doctor or individual who is outstanding in the field of pulmonary diseases. The Pioneer Award is given by the National Institute of Health. This award supports individuals who have demonstrated new ideas and approaches to major barriers in biomedical and behavioral research. These are just a few of the awards that he has received over the years.

When talking with Dr. Sugarbaker the one thing that you take away is his energy and passion for helping mesothelioma patients and their families. His new program at Baylor Medical Center in Houston will celebrate its second anniversary in July. To date he has seen well over 200 patients who have been diagnosed with mesothelioma. While much has changed in the mesothelioma world, the fundamentals still remain. He believes that when one is diagnosed with mesothelioma, it is in the best interest of both the patient and family to find a specialist they trust.

The Baylor Mesothelioma Treatment Center’s support group is equipped with social workers, navigators, chaplains, and nutritionists. He also has a team of doctors including surgeons, medical oncologists, radiologists, pathologists, and intensivists who round out the mesothelioma treatment center.

Dr. Sugarbaker’s tenacity and passion for mesothelioma is palpable when he speaks. One of his favorite messages to spread is that “when hope is part of the equation anything is possible.”

His research is well supported and he believes that they are incorporating all of their latest findings into the patient’s treatment plans as soon as possible. He has an extensive support group for patient’s caregivers and family members due to the fact that he believes this is a family disease and everyone needs to be supported during this endeavor.

Dr. David Sugarbaker has been a mentor to many physicians over the decades. He has influenced, mentored and worked with some of the leading doctors and researchers at mesothelioma centers throughout the world.

The mesothelioma community has been and continues to be fortunate that Dr. Sugarbaker continues on the quest for a cure for this aggressive disease. His leadership continues to inspire patients, families and members of the mesothelioma community.

Mesothelioma Center Review – Baylor College of Medicine

We recommend that when you or your family member is diagnosed with mesothelioma that you be evaluated at an academic, multi-disciplinary, mesothelioma center. In order to help you become familiar with what a center can offer, we feature one center per month.

Baylor mesotheliomaThe Mesothelioma Treatment Center Baylor College of Medicine

  • 6620 Main Street
  • Houston, Texas

Baylor St. Luke’s Medical Center

  • 6720 Bertner Avenue,
  • Houston, Texas

Mission- “Quality Life Extension Leading to a Cure.” David J Sugarbaker, MD Program has a three-part approach, treatment program, research program, and support program.

The program was founded in July of 2014 by Dr. David Sugarbaker, an international expert in mesothelioma. The program was founded due to the rising incidence of mesothelioma worldwide, and the advantages of specialized care. It is a multidisciplinary team approach program consisting of a treatment program, a research program, and a support program.

Director: Dr. David Sugarbaker Professor and Chief Division of General Thoracic Surgery Michael E. DeBakey Department of Surgery at Baylor College of Medicine.

Team: Dr. David Sugarbaker, Dr. Bryan Burt, Dr. Shawn Groth, Dr. Ori Wald, surgeons. Oncologist Dr. Eugene Choi and Dr. Jun Zhang Radiation oncologists, Nurses, Medical Assistants, Physician Assistants,

Fellows, Residents, Nutritionist, Clinical Research Associates, Surgical Coordinators, Mesothelioma Coordinator, Social Worker, Chaplaincy, Patient Advocate.

Affiliations: Baylor University School of Medicine Houston

Stats: Founded in July 2014.   To date has seen a total of 200 patients from all over the world with mesothelioma

Research: Currently on www.clinicaltrials.gov there are 2 clinical trials listed as active at the mesothelioma center. Both are enrolling patients. The first is a multi-center trial to see the efficacy and safety of anetumab ravtansine versus vinorelbine in progression free survival in patients with stage IV mesothelin overexpressing malignant pleural mesothelioma. The second is MED14736 Or MED14736 + Tremelimumab In Surgically Resectable Malignant Pleural Mesothelioma. Dr. Bryan Burt is the Director of General Thoracic Surgery Research.

Support Services: Spiritual, Care Management and Social Work, Nutrition, List of accommodation options available with discounts for patients and families.

Contact: Chelsea Odom, Patient Navigator 713-798-9159 Chelsea.Odom@bcm.edu

Schedule/Change/Alter Appointments: 713-798-6376

Mesothelioma Clinical Trial Review – MEDI 4736

c-trialsWe encourage participation in clinical trials for research leading to a cure for mesothelioma. It is known that nationally the statistics for participation in adult cancer trials is between 3-5% of adults who have a cancer diagnosis.

For mesothelioma patients and families that are interested in clinical trials, researching clinical trials and eligibility can be a time consuming barrier to participation. The information about clinical trials is available on www.clinicaltrials.gov.

Our goal is to feature one mesothelioma clinical trial monthly and break it down to understandable terms, to decipher the eligibility requirements, and to possibly encourage participation in these trials.

CLINICAL TRIAL- NCT02592551

Med14736 or Med14736 + Tremelimumab in Surgically Resectable Malignant Pleural Mesothelioma

Official Title- Window of Opportunity Phase 11 Study of MED14736 or MED14736 + Tremelimumab in Surgically Resectable Malignant Pleural Mesothelioma

Listing on www.clinicaltrials.gov

Sponsor:   Baylor College of Medicine

Location:   Baylor St. Lukes Houston Texas

Principal Investigator:   Bryan Burt MD. Baylor College of Medicine

Contact:     Michelle G Almarez BBA 713 798 3680 Michelle.Almarez@bcm.edu

Or:             Bryan Burt MD 713 798 8266   Bryan.Burt@bcm.edu

Purpose: The objective of this study is to determine whether MEDl4736 or combination therapy with MEDl4736 + tremelimumab are associated with favorable alterations of the intratumoral immunologic environment in subjects undergoing surgery for Malignant Pleural Mesothelioma.

Screening:

Eastern Cooperative Oncology Group (ECOG) performance status of 0 or 1

Adequate normal organ and marrow function as defined below: Hemoglobin > 9.0 absolute neutrophil count (ANC) greater than 1.5 x109/lL, platelet count greater than 100,000, serum bilirubin less than 1.5x institutional limits, creatinine clearance less than 2.0 or calculated creatinine clearance greater than 50 ml/min as determined by the Cockcroft-Gault equation.

Any malignant pleural mesothelioma epithelial, mixed or sarcamatoid

N2 Nodal disease if no progression after 2 cycles of chemotherapy

NO or N1 nodal disease as present on perioperative chest ct or pet ct

Eligibility Criteria:

  • Patients must be 18 years of age
  • Eastern Cooperative performance status of 0 or 1 Females must be non-reproductive potential (post-menopausal, hysterectomy, bilateral tubular ligation, oophorectomy or have negative serum pregnancy test.
  • Patient is willing to adhere to protocol
  • Have pleural mesothelioma constricted to one lung. Patient is staged at NO or N1 determined by chest ct or pet ct
  • Have N2 disease no progression after 2 cycles of chemotherapy. Patient will be considered if N1 or N2 develops during chemotherapy.

Exclusion Criteria:

  • Patient involved in another clinical trial within 3 months
  • Any treatment with PD1 or PDL-1 inhibitor including MEDI4736
  • N3 nodal disease
  • Uncontrolled seizures
  • Previous diagnosis of tuberculosis
  • History of transplant
  • Pregnant or breastfeeding
  • Uncontrolled brain metastasis requiring treatment
  • Known history of immunodeficiency
  • Hypersensitivity to MEDI4736 or tremelimumab
  • Uncontrolled illness including heart failure, angina, peptic ulcer disease, gastritis, active bleeding, chronic hepatitis b or c, HIV, psychiatric illness
  • History of leptomenigeal carcinomatosis
  • Had drugs with laxative properties and herbal or natural remedies for constipation within 90 days of receiving MEDI 4736 or MEDI and tremelimumab
  • Had vaccine within 30 days of receiving tremelimumab or within 6 months of receiving MEDI4736 or MEDI and Trememlimumab
  • Had sunitinib within 3 months of receiving tremelimumab
  • If you have had active or prior documented bowel disease
  • Active or prior documented autoimmune disease within the last 2 years
  • Any adverse event while receiving immunotherapy
  • Any toxicity while receiving cancer treatment
  • Any immunosuppressive drugs 28 days prior to to the clinical trial drugs and 90 days’ post infusion of treatment drug
  • Mean QT interval corrected for heart rate (QTc) > 470 ms calculated from 3 electrocardiograms (ECG’s) using Bazett’s Correction
  • Had any chemotherapy ,immunotherapy, endocrine therapy, targeted therapy, biologic therapy, tumor embolization ,monoclonal antibodies, other investigational drugs 30 days prior to first dose of study drug

How the Research Study is designed to work

Patients who have malignant pleural mesothelioma undergo a cervical mediastinal lymph node biopsy and also simultaneously undergo a biopsy of the pleura by thorcoscopy. The biopsy tissue must be 2 grams. In addition to these biopsies patient will also have blood drawn for this study. Approximately 1-2 weeks’ patients will be given MEDI-4736(15mg/kg once intravenously) or MEDI-4736(1500 mg once intravenous) also will receive tremelimumab (75 mg once intravenously) or a control group. There will be 2 treated arms and one controlled arm (untreated). Approximately two or three weeks’ patient will undergo surgical resection surgery either extra pleural pneumonectomy, or pleurectomy, and decortication. During this surgery the tumor will be removed and studied. At the initiation of surgery blood will be taken. Also the sixth rib will be removed at time of surgery. The surgery will include the standard treatment which includes intraoperative chemotherapy .

Sources:

www.ClinicalTrials.gov

With any clinical trial all participation is voluntary. Before enrollment a detailed consent form will be reviewed with the participant and signed. The participant can withdraw from a clinical trial at any point in time. Think about participating if able, the only way to progress to a cure for mesothelioma is through clinical trials.

Please do not hesitate to contact us with any questions.

Some of the terms used in the description of clinical trials can be confusing. For this clinical trial a definition of some of the terms are below.

Durvalumab- code name MEDI4736 or MEDI-4736- is a Fc optimized monoclonal antibody directed against cell death-1 ligand, with potential immune checkpoint inhibitory and anti-neoplastic activity. When given intravenously it binds to PD-L1- it then will reverse T-cell inactivation and activate the immune system to exert a cytotoxic T lymphocyte (CTL) response against PD-L1 expressing tumor cells.

Tremelimumab- code name CP-675 CP-675,206 – A human immunoglobulin (Ig) G2 monoclonal antibody directed against the human T-cell receptor protein cytotoxic T-lymphocyte associated protein 4 (CTLA4), with potential immune check point inhibitory and antineoplastic activities.

Source: National Cancer Institute Drug Dictionary

 

Why it is Important for Mesothelioma Patients to Set Goals

GoalsMany of us plan so much for our lives, however, sickness is usually not included in the equation. We plan our marriages, children, vacations, but illness is not one we plan for or foresee. As a professional in the medical industry, we meet many types of patients.  For instance, some patients want to know everything about their illness and others desire to know nothing at all. Despite what type of person they are, the first step in fighting an illness is a plan. Most people who plan appear to mentally have an easier course. Goals are what make us get up every morning and work hard. Goals become measurable and let us see improvement. That being said, it is important to have measurable goals. This is something people can still stick to even when everything is not going according to plan. In simple terms, when someone is diagnosed with an illness, the ultimate goal is to achieve better health.

According to a study, when one writes down their goals, they often have greater success. Writing down your goals helps to reinforce your commitment to them. It also helps you remember them and makes you accountable to them. Having goals keeps you focused. When some people become sick, they believe that they will just go with the flow, and simply leave the health improvements to the doctor. However, this creates an imbalance and ultimately fails in the long run. You are part of the equation and we need you to participate. This is your health and you are the determining factor of whether or not a treatment plan will work.

When diagnosed with mesothelioma it has been suggested that people who focus on certain goals before, during and after treatment are better off physically and emotionally. Start with taking a walk every day. Focus on your diet: a high protein, low-sugar diet is recommended along with a multivitamin everyday. Attention to sleep is also important. Becoming aware of sleep problems and management of the effects of sleep disturbances will help your overall well-being. Keeping your spirits up and communicating what you are feeling is very important for your health.

Once you start treatment the care team has a plan for you and you should be aware of it. Having a plan helps you have a strategy which will then help you achieve your ultimate goal of better health. When you visualize your goals, you are putting your plan into action. A lot of goals can include physical activity. If you can see yourself walking after surgery on day 1, that is a huge success. In your mind, you must visualize yourself getting out of bed and keep in mind how you will feel when you obtain your goals. Discuss with the nurse and make a plan for yourself and collaborate on ideas. Collaboration is the key when it comes to achieving your goals.

– Lisa

New Developments in Chemo Administration for Mesothelioma

When mesothelioma progresses there can be pain and that can decrease quality of life. Recently we wrote about a Clinical Trial at the Moffitt Center designed to deliver chemotherapy locally to patients to help alleviate pain and improve quality of life. This therapy is called trans arterial chemo perfusion. This therapy is being examined for administering of a small amount of chemotherapy via an arterial catheter.

The procedure involves inserting a small catheter usually in the groin and threading it up to the area of the tumor. At that point specific blood vessels that allow the tumor to flourish are identified and chemotherapy is applied locally to the area. It is theorized that local application of the chemotherapy will help to avoid systemic side effects caused from chemotherapy. By applying the chemotherapy locally to the mesothelioma tumor, it is hoped the tumor will shrink and alleviate some of the pain and symptoms of mesothelioma. Some of the symptoms that it hopes to improve are shortness of breath and pain, thus improving the quality of life for mesothelioma patients.

It is confusing to realize how many different ways that chemotherapy can be administered. Chemotherapy is commonly given by mouth, or by catheter that has been placed into a vein. Another procedure that is currently being used for other cancers is called trans arterial chemo embolization or TACE. A doctor, most commonly a trained Interventional Radiologist, inserts a catheter into usually a large blood vessel in the patient’s groin and feeds it up through the arterial system. This procedure involves first installing the chemo through the catheter and then inserting tiny beads toward the tumor that then block the blood supply and nutrients. Another way of administering chemotherapy is during surgery for certain conditions. Chemotherapy is heated and washes the area after removal of all the tumor that is visible to the surgeon’s eye. Intra op heated chemotherapy has been administered for peritoneal mesothelioma and for pleural mesothelioma and other cancers.

The Moffitt Trial is the first one with this therapy being conducted in the United States for pleural mesothelioma. A previous clinical trial of patients with pleural mesothelioma and chemo perfusion has taken place in Germany – published in the Journal of Radiology in February of 2013, Non Selective Trans arterial Chemo perfusion: A Palliative Treatment for Malignant Pleural Mesothelioma, by TJ Vogl et al. The purpose of this clinical trial was to evaluate tumor response and alleviation of patient’s symptoms after treatment. The conclusion of this trial was that chemo perfusion has the potential to yield positive results for the treatment of recurrent and or unrespectable pleural mesothelioma.

Become informed about the treatment options that might be available for you or your loved one. Clinical Trials often offer an option that is not yet available.

– Ellie

National Cancer Survivors Day: Celebrating Mesothelioma Survivors

cancer survivorAs summer approaches, we are reminded that the first Sunday in June is the official National Cancer Survivor Day. This year the 29th annual day is scheduled for Sunday June 5th. According to the website National Cancer Survivors Day, www.ncsd.org, a “‘survivor’ is anyone living with a history of cancer- from moment of diagnosis through the remainder of life.” The number of people who have had cancer has risen from 3 million in 1971 to 14.5 million today according to the American Cancer Society and National Cancer Society.  In the United States 86% of all cancers are diagnosed in people 50 years of age or older. Approximately 15% all cancers were diagnosed 20 years ago and more than half of cancer survivors are older than 65 years of age. The 5 year survival rate for all cancers diagnosed during 2005-2011 was 69% up from 49% during 1975- 1977, according to www.cancer.org. The great news according to the American Cancer Society is that cancer rates are dropping and survivorship is growing. This statistic is based upon better treatments, along with better and quicker detection.

National Cancer Survivor is designed to be a day to celebrate life. “National Cancer Survivors Day is a celebration for those who have survived, an inspiration for those recently diagnosed, a gathering of support for families, and an outreach to the community.” www.ncsd.org

Surviving mesothelioma is a big challenge. If you have been diagnosed or living with mesothelioma, this is your day to recognize all that you and your family have been through. You have worked hard to get to this point. If you look around you can find people who are living and going on with life after this diagnosis. There will be celebrations throughout communities, hospitals and local medical centers. This is a celebration to let people know how rewarding life can be after battling a cancer diagnosis.

As much as we study the cancer diagnosis we are aware that cancer has its effects on patients physically and mentally. As cancer survivorship increases so does the support and education to obtain a healthy lifestyle. There are many support groups that help with living life after cancer and its treatment.

Celebrate how far mesothelioma research has come and how nice it is to be a survivor on the first Sunday of June!

– Lisa

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